Severe Aplastic Anaemia Working Party (SAAWP)
Study type:
Study number:
84090095
Type of treatment:
Allogeneic
Diseases:
Bone marrow failure
Short title:
Transplant outcomes in elderly patients with SAA
Primary objective:
Describe the outcomes of patients with severe aplastic anemia (SAA) who received an allogeneic transplant between 2010 and 2020, specifically analyzing the impact of age (particularly in patients over 40 years old) on overall survival (OS).
Key inclusion criteria:
Country:
All EBMT member countries
Principal investigator:
Antonio Risitano
EBMT Study coordinator:
Joe Tuffnell
Study coordinator email:
saawp@ebmt.org
EBMT Study Unit:
Leiden Study Unit
Reason for processing personal data:
Research and Development of new and improved transplant, cell therapy and immunosuppression procedures.
Categories of personal data collected:
Medical data already reported to the EBMT Registry
Recipients who may access the data:
Leiden Study Unit
Statistical Unit
3rd-party processors of Personal Data on behalf of EBMT/Service provider:
No
Privacy notices
Article 6 lawful basis for processing personal data:
Article 6.1 (a) - Consent (Collection)
Article 9 basis for processing special category data:
Article 9(2) (a) - Consent (Collection)
Data Protection Impact Assessments
Rights available to individuals:
Access
Data portability
Rectification
Objection
Deletion
Is a Data Protection Impact Assessment required?:
DPIA performed for EBMT Registry (WP & NIS Studies)
Retention Schedule (if possible):
at least 5 years after the final report or first publication of study results