Nursing Research Committee
Nursing Paediatric Committee
Paediatric Diseases Working Party (PDWP)
Study type:
Study number:
84150014
Type of treatment:
Allogeneic
Autologous
Diseases:
All diseases
Short title:
Primary objective:
To provide expert-based recommendations on prevention and management of conditioning related skin toxicity in pediatric HSCT patients.
Key inclusion criteria:
The study population consist of experts in the field of pediatric HSCT, including nurses, pediatricians, pharmacists, dermatologists and in case additional experts are known who could add to the topic, they were welcomed to join the expert panel.
• In case of professionals: a minimum of 5-year experience in working within the field of pediatric HSCT (nurses and physician) or working closely with the teams of pediatric HSCT (pharmacists, radiologists, dermatologists, and wound care nurses);
• Experience in conditioning-based skin toxicities defined as experience with at least 5-10 patients receiving the treatments of interest for this study each year;
• Speaking, reading and writing English with sufficient fluency to be able to communicate effectively.
• In case of professionals: a minimum of 5-year experience in working within the field of pediatric HSCT (nurses and physician) or working closely with the teams of pediatric HSCT (pharmacists, radiologists, dermatologists, and wound care nurses);
• Experience in conditioning-based skin toxicities defined as experience with at least 5-10 patients receiving the treatments of interest for this study each year;
• Speaking, reading and writing English with sufficient fluency to be able to communicate effectively.
Country:
All EBMT member countries
Principal investigator:
Mihaela Hartmann, Hilda Mekelenkamp
EBMT Study coordinator:
Brian Piepenbroek
Study coordinator email:
nursesgroup@ebmt.org
EBMT Study Unit:
Leiden Study Unit
Reason for processing personal data:
Not applicable to surveys
Categories of personal data collected:
Not applicable to surveys
Recipients who may access the data:
Not applicable to surveys
3rd-party processors of Personal Data on behalf of EBMT/Service provider:
Not applicable to surveys
Privacy notices
Article 6 lawful basis for processing personal data:
Not applicable to surveys
Article 9 basis for processing special category data:
Not applicable to surveys
Data Protection Impact Assessments
Rights available to individuals:
Access
Data portability
Rectification
Objection
Deletion
Is a Data Protection Impact Assessment required?:
Not applicable to surveys
Retention Schedule (if possible):
Not applicable to surveys