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National Access and need for CAR-T CD19 therapy in Euro region

Paediatric Diseases Working Party (PDWP)
Study type:
Study number:
8417049
Type of treatment:
CAR T
Diseases:
All diseases
Short title:
 
Primary objective:
The IMPACT (Improve Access to CAR-T CD19 therapy in European region) Study is a collaborative effort between The European Group for Blood and Marrow Transplantation (EBMT) PDWP, International BFM Study Group, Committee ALL and St. Jude Global assessing access to CAR-T therapy across the European region.
The project is seeking input from institutional and country leaders in pediatric acute lymphoblastic leukemia, across the European region

Key inclusion criteria:
 
Country:
All European countries
Principal investigator:
Aleksandra Oszer(Lodz)
EBMT Study coordinator:
Arnaud Dalissier
Study coordinator email:
arnaud.dalissier@ebmt.org
EBMT Study Unit:
Paris Study Unit
Reason for processing personal data:
Not applicable to surveys
Categories of personal data collected:
Not applicable to surveys
Recipients who may access the data:
Not applicable to surveys
3rd-party processors of Personal Data on behalf of EBMT/Service provider:
Not applicable to surveys

Privacy notices

Article 6 lawful basis for processing personal data:
Not applicable to surveys
Article 9 basis for processing special category data:
Not applicable to surveys

Data Protection Impact Assessments

Rights available to individuals:
Access
Data portability
Rectification
Objection
Deletion
Is a Data Protection Impact Assessment required?:
Not applicable to surveys
Retention Schedule (if possible):
Not applicable to surveys