The SAAWP reports on Aplastic Anaemia (AA) and other rare acquired and inherited bone marrow failure disorders.
The SAAWP provides essential data on outcomes after treatment from large numbers of patients that can only be obtained from large registries like the EBMT. It also provides important clinical information needed to help classify and characterise the disease and data on the natural history of the disease and late effects that occur after treatment.
The SAAWP holds the Aplastic Anaemia (AA) database that is the only “disease-specific” database within the EBMT. Data are collected not only on patients receiving transplants but also other forms of therapy, including immunosuppressive therapy.
SAAWP Team
SCIENTIFIC COUNCIL representative with the Registry portfolio
SAAWP Chair
Registry Committee Co-Chair
Italy
SECRETARY SAAWP
United Kingdom
SAAWP Nurse
United Kingdom
SAAWP STUDY COORDINATOR LEAD
Nurses Group Study Coordinator Lead
Leiden,
Netherlands
Study Coordinator
Leiden,
Netherlands
CMWP & SAAWP Senior Biostatistician
Rome,
Italy
CMWP & SAAWP Biostatistician
Leiden,
Netherlands